GRANT OPPORTUNITY TO STUDY LONG COVID

DRRC:

In recent weeks, NIH has released additional information about its RECOVER Initiative, the cross-agency effort to study Long COVID or Post-Acute Sequelae of SARS-CoV-2 (PASC) using the $1.15 billion appropriated by Congress for this work.

First, NIH has significantly expanded the information available on the RECOVER website recovercovid.org.

This includes:

*  New information on the leadership of RECOVER, including the Executive Committee made up of NIH leaders, the Steering Committee of external researchers across the country and patient representatives, and the National Community Engagement Group (NCEG), made up of nominees representing patients, caregivers, and community members. The NCEG has thus far only included individuals nominated by RECOVER researchers at local study sites; however, the website notes that additional slots for nominations will be opened in the future. Information on the RECOVER leadership can be found here.

 *  The full RECOVER research protocol (study plan) for the adult cohort has also been released, available here.

 *  NIH has also hosted several recent seminars on Long COVID through their RECOVER Research Review (R3) series. The "Clinical Spectrum of PASC: Overview" seminar held on March 22 is now available as a full recording and transcript on the RECOVER website here (scroll down to Videos and Presentations). Other recent seminars on "Commonalities with Other Disorders and Post-Viral Syndromes: Focus on ME/CFS" (April 12) and "Clinical Spectrum of PASC: Focus on Pediatrics, Including MIS-C" (April 26) should be published in the near future.

 *  NIH has several additional webinars planned, and we encourage any interested DRRC members to attend. Registration information is not yet posted on the RECOVER website, but the planned topics and dates are as follows:

   *  May 10, 2022: Clinical Spectrum of PASC: Focus on Dysautonomia
   *  May 24, 2022: Leveraging EHR/Real World Data to Understand PASC
   *  June 14, 2022: Clinical Spectrum of PASC: Focus on Neuro-cognitive Function

If you would like to sign up directly for the RECOVER mailing list for future updates, you can do so here (scroll down to "Stay Tuned and Sign Up for Email Updates").

Please also see this attachment for a new Research Opportunity Announcement (ROA) from RECOVER on Clinical Trials for Prevention and/or Treatment of Long COVID. The full ROA can also be found here. We encourage all DRRC members to distribute this for your networks and encourage submissions by disability-focused researchers. NIH is planning to host a technical assistance webinar for those seeking to submit applications on Friday, May 6.

Thank you,

Joe Nahra
Director of Government Relations

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